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Official launch of the Organization for Rare Disease Awareness

EventAdvocacy
📅 29 September 2025
📍 Amman, Jordan
Official launch of the Organization for Rare Disease Awareness

An awareness event for public- and private-sector stakeholders on rare diseases and patients’ needs.

ORDA held its official launch on 29 September 2025, under the patronage of HRH Princess Basma Fatima bint Ali bin Nayef Al-Hashemi.

An official launch ceremony and awareness event for public- and private-sector stakeholders, presenting rare diseases and patients’ needs and challenges in Jordan and globally through videos and presentations.

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