ORDA heroes
Rare-disease warriors: real stories told by the people who live them, of diagnosis, challenge and hope.
Qutaiba
Gaucher disease · late diagnosisSanad’s mother
HomocystinuriaRaneem’s mother
Gaucher disease · early diagnosisDana
Crohn’s diseaseSaba
Mucopolysaccharidosis type VI (MPS VI)Aydah
Systemic sclerosis & interstitial lung disease (ILD)Ammar
Complex regional pain syndrome, type II (CRPS II)Our doctors explain
Awareness videos by ORDA’s doctors about rare diseases.
Prof. Khaled Sayel Owaidat
Consultant in internal and respiratory medicine and sleep disordersShortness of breath and a dry cough… have you heard of pulmonary fibrosis? In collaboration with Boehringer Ingelheim.
Dr. Manal Suleiman Al-Mashaleh
Senior Consultant, Internal Medicine & RheumatologyDo you have a story?
Your story may be the hope another patient is waiting for. Contact us to share it, with your consent.
Contact us