ORDA’s president tells, in her own words, her journey with systemic sclerosis, from the first symptoms to founding ORDA.
Mal wa Amal magazine published an article by Aydah Abu Eliem, “My journey with a rare disease”, telling of the first symptoms of systemic sclerosis, the diagnosis and the treatment, loneliness and emotional strain that followed, her treatment journey in the United States, and how it all led her to found ORDA.